MY SON WITH CHIARI
A video for Alex
from his Mum Rhonda
From the video's info box text:
My 8yr old son, has a rare disease called
Chairi Malformation is a serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms such as, painfull headaches in the back of the head, that increases in pain with straining or coughing, ringing in ears, painfull tingly sensations, and many other symptoms.
This video was originally made just for my son and our family during his stay at the hosptial for his decompression surgery. But i'm hoping that by uploading it, that I can help with awarness about this condition, that can be so misunderstood by many Dr's and patients, many people are still being misdiagnosed every year.
Please take the time to visit www.conquerchiari.org and educate yourself about Chairi/Syringomyelia even if you are not effected with it or not..
Knowledge is power :)
Thank you all"
Go to the above noted website for
more information about Chiari.
Additonal information (English)
Additional Information (German)
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and his Mum Ronda,
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